Learn how to navigate cystic fibrosis care with confidence, from treatments and school plans to building a supportive medical ...
Although cystic fibrosis is a single gene mutation, there are more than 1,000 different ways the CFTR gene can mutate in ...
A woman who did not believe she would live until she was 30 due to a genetic illness affecting her ability to breathe has ...
Alice Ward, directed the film ‘Salt’, is an autobiographical exploration of the role that salt and the ocean has played in Alice’s life as a filmmaker, surfer and person with Cystic Fibrosis (CF).
Between the first week of pulmonary rehabilitation and the last recorded session before transplantation, lung transplant ...
After my son, Julius, was diagnosed with cystic fibrosis, I adjusted to his daily treatments and medical routines, and though I feel guilt and sadness seeing him becoming so familiar with his CF ...
When Alice Ward was born and wasn’t thriving, her mother Mary McLoughlin noticed her skin was very salty – a clue that she ...
The Foundation’s National Volunteer Advocacy Committee provides guidance and support to further strengthen and enhance the ...
A Nenagh man is trying to raise greater awareness about cystic fibrosis, a largely misunderstood disease in spite of its ...
A team of four women from Pembrokeshire have made history, after completing a 3,200-mile Atlantic row in just 53 days. They travelled from Lanzarote to Antigua, and their journey broke two world ...
Greek Peak hosted a 24-hour “Shred the Night” challenge to raise funds. Teams of one, two or four can raise money for CFF. Season passes, three-day tickets, skis and a sponsored helmet will be awarded ...