The Foundation’s National Volunteer Advocacy Committee provides guidance and support to further strengthen and enhance the ...

Although cystic fibrosis is a single gene mutation, there are more than 1,000 different ways the CFTR gene can mutate in ...

From today, the updated indication for TRIKAFTA is as follows: TRIKAFTA is indicated for the treatment of cystic fibrosis in patients aged 2 years and older who have at least one F508del mutation in ...

The Trump administration is threatening two life-saving programs: the National Institutes of Health (NIH) and Medicaid. This is a current and future medical emergency. But for NIH, our adult daughter ...

The genetic condition cystic fibrosis had no treatments on the NHS before 2019 and a Daily Express campaign - now a miracle ...

A new research project focusing on rare genetic mutations that are linked to cystic fibrosis just received $600,000 in ...

John and his wife, Rachel Meadows, are sharing more about their search. The happy couple has twin 3-year-old boys, they say finding a match will help make sure John gets to be here to watch them grow ...

Emery, a young girl born with two of the rarest mutations of Cystic Fibrosis, desperately wanted a dog—a Corgi to be exact.

Learning from examples like congenital heart disease and cystic fibrosis can help health systems and clinicians prepare to care for an influx of patients with neuromuscular diseases as they reach ...

The family of a girl who died after been struck by a car as she crossed a street in Limerick city, marched through the city ...

Two parents from Bexleyheath are set to take on the London Marathon to raise money for three incredible heart charities.